Frustrated with Feeding Therapy

Posted on 27. Jun, 2006 by Stacy in Your Home

I thought I’d give you a little background on an issue my family has been dealing with for more than a year now. My 3 year-old is in feeding therapy. She DOES NOT chew her food. She has what is called tactile defensiveness. More to the point, she has a problem with texture. Hates anything crunchy or lumpy in her mouth. Will not touch certain foods. She will only eat smooth things like yogurt, pudding, applesauce, baby oatmeal, etc. For the longest time, she was eating ONLY baby food. Pureed jars of baby food.

I noticed something wasn’t right when she was about 8 months old. She had no interest in Cheerios. Wouldn’t touch them. She would gag if I put them in her mouth. She would gag if they were in MY mouth. I tried other things like cheese or pasta or even bread, but she wanted nothing to do with any of it. My pediatrician kept saying it’s no big deal. She’ll get there. Give her some time. So I did.

On her first birthday, things were no different. I wanted so bad for her to taste a piece of her yummy vanilla cupcake but she refused. Wouldn’t even lick the icing. Any time I tried she would scream and cry. Needless to say I never got the face-full-of-cake picture I was hoping for.

Still my pediatrician said, "don’t worry." She was gaining weight so there was no cause for alarm. She’s just picky people tried to tell me. I knew it was more than that. She didn’t like the way the grass felt on her bare feet. She hated finger paint and sand. She would have a tantrum if the sun was in her eyes. It was drivng me crazy that these things were upsetting her and everyone kept saying it was normal.

So, at her 2 year checkup with the doc, I said I wanted to see somebody. He suggested a feeding therapist. I went to see her and she also suggested getting her evaluated by Early Intervention, which I did.

She qualified for both and has been receiving occupational therapy and feeding therapy for a little more than a year now. The progress has been EXTREMELY slow going. The worst part for me is not having anyone to talk to. I know absolutely no one who has ever had to deal with something like this. I searched the web but the moms I found had kids who were either autistic or had downs syndrome and my daughter has neither. In fact, she is super bright. And that’s part of the problem.

I could never trick her or bribe her or force her to eat. When I did get past the fear and anxiety and get her to eat a spoonful of macaroni and cheese or pastina, she would gag and throw up. It is a vicious cycle.

I’ve gone from feeling hopeful to desperate and finally back to hopeful.

She has made some great progress. She loves french fries and will put them in her mouth and pretended to chew. She will suck on them and even break off small pieces and swallow. It might not sound like much, but if you know how we’ve been struggling for the past year, you’d be proud.

But I feel myself losing hope. Even the feeding therapist seems confused. Why is she still not chewing? She suggested I check out St. Joseph’s Hospital. They have an intensive feeding program where she would go every day for a few hours and they guarantee success. I’m tempted but finances are tight and chances are it won’t be covered by insurance. As it is now, her therapy is only covered 80 percent.

I am so tired of dealing with this. I want it to be over. I am angry. I am frustrated. I don’t know what to do anymore.